My friend Jeff and I used to escape the campus of Pacific University in Forest Grove, Oregon by walking to the bus
stop for Tri-Met line 57. It was the final stop about 25 miles west of
Portland. We’d grab as much change as we
could and try to get to Portland to visit cool record stores and such, despite
the hour and a half trip each way. If we
had less time, or patience, we’d ride the 16 or so miles into Beaverton and go
to Tower Records. We needed to feel civilization. Being on a small college campus in an
isolated town that didn’t want to have anything to do with the college students
back in 1989/90 was a little claustrophobic.
There was little to do, so we invented our own fun, and minor
escapes. During our treks to the bus
stop near the mini mart and the Vac
& Sew storefront, we generally sang exaggerated versions of songs that
would pop into our heads.
One of those songs was The Cure’s “Lullaby.” It was never a huge favorite of mine from their catalogue, but our overly breathy version was, well, it was a thing. The combination of the exaggerated gasping whispers and the attempts to stifle our laughter while performing this song for our own entertainment would lead to near hyperventilation. If it wasn’t “Lullaby,” it might’ve been “Fire in Cairo,” or “Party of the First Part,” or “Debaser,” or “Cuts You Up,” for which I was convinced I had perfected the Peter Murphy croon, but I’m sure in reality I sounded more like a dying harbor seal barking out my misery. Then there was the Jesus and Mary Chain’s “Sidewalking,” which included our repeating howls of “chilled to the bone” and an impossible contorted stroll that can only be described as a silly walk – Monty Python-style. I would say, “You had to be there,” but it still likely would not have made any sense. None of it ever made sense, but I will never forget those mini adventures and the laughs.
I woke up from a short fit of sleep recently
having dreamt of spider webs. They were
everywhere. Thick and sticky. In my eyes and mouth. Surrounding me enough to make me believe that
a giant spider or a gang of ambitious regular sized spiders were hunting me. I could feel the webs in my mouth and
sticking to every part of my body as I tried to force my way through them. There were layers and layers.
Legend has it that one of Robert Smith’s uncles would tell him nightmarish bed time stories about a spiderman that would eat sleeping children. Was the “Spiderman” from “Lullaby” coming for me after all these years for making fun of the song?
I look back at those days with bewilderment. I was fairly healthy and one of my biggest fears at that time was sleeping through my 8:30 am classes at college. Sure, life wasn’t always fun and games, but a lot of my needs were met, I had new friends, my small insular world was expanding, and there wasn’t a lot of outside pressure.
Generally, I’m not one to read a lot into dreams. If I’m dreaming about looking for a bathroom then, yes, I likely need to pee in real life and should wake up. In this case though, the imagery is not lost on me. I’m pretty sure that those webs represent my own inhibitions and shields that I’ve continued to build and maintain throughout my life.
I’ve always been slow to trust and very wary of trying new things, especially if there’s potential danger. And by danger, I mean everything from falling from a tree fort, or flying off jumps on my first dirt bike, to opening myself up for emotional damage from failed relationships. For the most part, I’ve kept to myself, which has always felt safer and frankly, comfortable. It can get lonely sometimes, but I’m not so bad at keeping myself company most of the time. As a kid, I never fully embraced being away from home. Never felt comfortable sleeping over anywhere. I preferred spending time with friends and then going home. I’m still that way.
After years of medical issues that
have caused a lot of damage, I am feeling like I’ve isolated myself into a
deep, dark hole full of those sticky webs that will not allow me to
escape. It’s frustrating, because I’ve
been this way for so long, that I am not sure how to remedy this
self-entrapment. The older and
unhealthier I get, the more I realize that I cannot do this alone anymore. I need help, but I don’t know specifically
what help I need or how to ask. I feel
like I’ve alienated a lot of friends who have offered help, by declining, but I
do not know how to relinquish control of every aspect of my being, or what to
ask for, and I don’t know how accept the idea that I’m anything but a nuisance
or burden, if I reach out for help. Pride
is a bitch.
Self-hatred would likely have
happened anyway, but it took a dark turn after having a few serious abdominal
surgeries before I turned 20. I do not
feel proud of my scars like well-adjusted people do for having toughed things
out. I feel mutilated like some sort of Frankenstein’s Monster. Back then though, I suppose I had enough
belief that eventually I’d pull myself free of my self-imposed shackles and not
be ashamed of my physical being. It has
never happened. Shame and embarrassment
has only expanded with age and numerous hardcore medications. Steroids, chemo drugs, immune suppressants,
and numerous cholesterol and blood pressure medications have helped me morph
into some kind of pale doughy crippled Sasquatch. I feel humiliated. Ashamed.
I could go on and on.
Shit. This got dark real quick.
What I’m trying to say is that I think this dream led me to some self-reflection and a full honest realization of how I’ve sabotaged myself over the years as part of my unfortunate lifelong unhealthy journey. Emotionally, I do not know how to handle it anymore. My poor social skills have caught up with me leading to isolation and difficulty navigating some of the few friendships I have remaining. I spend so much time with medical professionals that they have essentially become my social circle, which is incredibly unhealthy. When I move on from a physical therapist or a specialist having completed some kind of arbitrarily sanctioned insurance coverage. I get incredibly sad, because these people are no longer part of my life.
As I mentioned above, I seem to reject offers of help. I do not know what to ask for, and by the time I do have a specific need, I struggle to send out a request, nor do I want to give up control and my privacy. The nature of my health issues stems from a genetic disorder that never seems to end, as long as I keep surviving. So, the same things that were making my life hell in 1991, are still affecting me – only it’s expanded and become more all-encompassing. I feel embarrassed and reluctant to keep complaining to those I love about the same old shit. Nothing has changed. The disorder is unrelenting. I often get “what now?” reactions when I attempt to communicate my problems to others. How do I make it clear that I live with this stuff every day and have most of my life? It doesn’t go away. It is a part of who I am.
What’s funny is that intellectually I
recognize that I self-shame myself into oblivion. I am proud of my survival on a certain
level. Not a level that’s high enough
for me to prevent me from feeling like a waste and a failure. I can recognize this kind of defeatist
attitude in others when they manifest it and I can come up with compelling
arguments as to why they shouldn’t punish themselves that way. Apparently, these arguments do not apply to
me. Is it possible to turn things
around? Is it possible to undo a
lifetime of mental sabotage? Is it
possible to fend off the spiderman? Do I
want to fend off the spiderman, or do I want to give up?






Where did we get the idea that surviving has to be pretty? This being human thing is so damn hard, and when you layer capitalism and messages about "masculinity" on top of it, it becomes nearly unbearable. I love that you have not only the encyclopedic memory for music that you have (Jesus and Mary Chain! I had totally forgotten about them!! But I'll never forget what a kick-ass DJ you were in high school) but that music has given you such joy over the years. Also, I remember that Vac & Sew so clearly.
ReplyDeleteLearning to ask for help is revolutionary in this culture (especially for folks of our generation). Learning to actually receive it is even more revolutionary, because it requires believing we're worthy of it. And you are - not because of anything you've done or something you can offer to others, but simply because you exist on the face of the planet.
I am no dream-interpreter, but one thing I love about spider webs is that they function as an extension of a spider's nervous system - essentially, they alert the spider to things "rippling" out there beyond their vision or tactile ability so they know what's happening even when they're not around. They represent connection to things far and wide. Maybe that means you can rest in the knowledge that you are connected in ways you don't even know about, and you can rely on those connections when you need a reminder that you are important and part of something that values you.
Thank you Kari. These are wise words! I owe you so much. Because of your recent writings, I have begun to examine my feelings about the decisions I make and why I might make them on a deeper level. Of course, making change, as you know, is not so easy. Who knew that Vac & Sew was so impressionale?
ReplyDeleteYour writing is a treasured gift to all who are blessed by reading it. If it were possible, I would wish your health challenges away. Watching you and your dear family struggle for so many years is heartbreaking. Please continue to write, write, write. You have an extraordinary gift and I love everything you post. Joan
ReplyDeleteThank you so much Joan! You are so kind and such an amazing friend to my family!
ReplyDelete